FSD3066 Support Networks of Families with Special Needs Children 2014
The dataset is (C) available for research only (including Master's, doctoral and Polytechnic/University of Applied Sciences Master's theses). The dataset may not be used for teaching, study (e.g. seminar papers, essays) or other theses (Bachelor's theses or equivalent).
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Study description in other languages
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Study title
Support Networks of Families with Special Needs Children 2014
Dataset ID Number
FSD3066
Persistent identifier
urn:nbn:fi:fsd:T-FSD3066Data Type
Qualitative
Authors
- Nystedt, Ursula (University of Jyväskylä)
Abstract
The data consist of interviews of families whose children had been diagnosed with a developmental disability or some other long-term illness. The interviews charted the support received by the families from health and social services, educational services, third sector, and peers and relatives. The interviews were informal and the interviewees talked about, for instance, parenthood, coping, and everyday life of families with special needs children.
The dataset is only available in Finnish.
Keywords
disabilities; disabled children; family life; parental role; parents; social services; social support; special needs education
Topic Classification
- Social sciences (Fields of Science Classification)
- Specific diseases, disorders and medical conditions (CESSDA Topic Classification)
- Children (CESSDA Topic Classification)
- Specific social services: use and availability (CESSDA Topic Classification)
Series
Individual datasetsDistributor
Finnish Social Science Data Archive
Access
The dataset is (C) available only for research including master's theses.
Data Collector
- Nystedt, Ursula (University of Jyväskylä)
Collection Dates
2013 – 2013
Nation
Finland
Geographical Coverage
Finland
Analysis/Observation Unit Type
Individual
Family
Event/Process/Activity
Universe
Parents of children with disabilities
Time Method
Cross-section
Sampling Procedure
Non-probability: Purposive
The researcher knew one of the families she interviewed and the rest of the participants were discovered through the first family (snowball sampling). Two of the interviews were conducted in the homes of the interviewees, one at the workplace of the interviewees, and one at the researcher's home. One of the interviews was conducted in English, while the rest were conducted in Finnish.
Collection Mode
Face-to-face interview
Research Instrument
Interview scheme and/or themes
Data Files
The data contain 4 interviews in ODT and HTML file format. There are approximately 110 pages of interview material.
Data File Language
The data files of this dataset are available in the following languages: English and Finnish.
Qualitative data are available in their original language only and are not translated.
Data Version
1.0
Completeness of Data and Restrictions
References to names and other direct identifiers as well as indirect identifiers referring to third persons and sensitive content were removed from the data during archiving. Names of third persons have been removed or, if occurring more than once, pseudonymised. Changes made to the data at the Data Archive are indicated by [[double square brackets]].
Citation Requirement
The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.
Bibliographical Citation
Nystedt, Ursula (University of Jyväskylä): Support Networks of Families with Special Needs Children 2014 [dataset]. Version 1.0 (2015-12-18). Finnish Social Science Data Archive [distributor]. https://urn.fi/urn:nbn:fi:fsd:T-FSD3066
Deposit Requirement
Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.
Disclaimer
The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.
Related Materials
Nystedt, Ursula (2015). Kestääkö verkko? Sairaan tai vammaisen lapsen perheen tukiverkoston muodostuminen. Jyväskylä: Jyväskylän yliopisto. Erityispedagogiikan pro gradu -tutkielma. URN:NBN:fi:jyu-201505121822
Related Publications
Tarvainen, Merja (2024). The sense of difference: Disability and loneliness as emotional and social isolation. In Hisayo Katsui & Matti Laitinen (Eds.) Disability, Happiness and the Welfare State: Finland and the Nordic Model. Abingdon, Oxon; New York, NY: Routledge, 12-27.
Study description in machine readable DDI-C 2.5 format
Metadata record is licensed under a Creative Commons Attribution 4.0 International license.