Study title

Life of Disabled Persons in Finland 2013-2014

Dataset ID Number

FSD3040

Persistent identifier

urn:nbn:fi:fsd:T-FSD3040

Data Type

Qualitative

Authors

• Finnish Literature Society (SKS). Folklore Archives
• Threshold Association

Abstract

The data consist of texts written by disabled people about what their life was and had been like as a disabled person in Finland. Collection of data was conducted as part of a research project (2012-2015) funded by the Finnish Cultural Foundation charting the lives of disabled people in Finland.

The participants wrote about, for instance, what kind of disability they had, how the disability affected their daily life, what their childhood they had been like, and which problems they had faced in life. The participants could write their text in the form and perspective of their choosing.

The dataset is only available in Finnish.

Keywords

care of the disabled; disabilities; disabled persons; injuries; life histories

Topic Classification

• Social sciences (Fields of Science Classification)
• Medical and health sciences (Fields of Science Classification)
• Specific diseases, disorders and medical conditions (CESSDA Topic Classification)
• General health and well-being (CESSDA Topic Classification)
• Minorities (CESSDA Topic Classification)

Series

Individual datasets

Distributor

Finnish Social Science Data Archive

Access

The dataset is (C) available only for research including master's theses.

Data Collector

• Suomalaisen Kirjallisuuden Seura. Kansanrunousarkisto
• Threshold Association

Collection Dates

2013-10-01 – 2014-05-31

Nation

Finland

Geographical Coverage

Finland

Analysis/Observation Unit Type

Individual

Event/Process/Activity

Media unit: Text

Universe

Disabled people living in Finland

Time Method

Cross-section

Sampling Procedure

Non-probability: Availability

Writing instructions were available on the website of the Finnish Literature Society (SKS). The invitation to participate was sent to the Finnish Literature Society's respondent network and advertised widely to associations and organisations of disabled people and to some other voluntary organisations whose members could potentially be interested in participating. The associations and organisations were asked to advertise the data collection in their newsletters and on their websites. Participants were able to deliver their texts by using the form on Finnish Literature Society's website, by email or by letter.

Collection Mode

Self-administered writings and/or diaries

Research Instrument

Data collection guidelines: Self-administered writings guide

Data Files

11 texts in RTF and HTML files (in Finnish). Length of the texts ranged from one to 16 pages.

Data File Language

The data files of this dataset are available in the following languages: Finnish.

Qualitative data are available in their original language only and are not translated.

Data Version

2.0

Related Datasets

FSD3064 Parents of Deafblind Children 2007

Completeness of Data and Restrictions

References to names and other direct identifiers as well as indirect identifiers referring to third persons and sensitive content were removed from the data during archiving.

Citation Requirement

The data and its creators shall be cited in all publications and presentations for which the data have been used. The bibliographic citation may be in the form suggested by the archive or in the form required by the publication.

Bibliographical Citation

Finnish Literature Society (SKS) & Threshold Association: Life of Disabled Persons in Finland 2013-2014 [dataset]. Version 2.0 (2017-08-10). Finnish Social Science Data Archive [distributor]. https://urn.fi/urn:nbn:fi:fsd:T-FSD3040

Deposit Requirement

Notify FSD of all publications where you have used the data by sending the citation information to user-services.fsd@tuni.fi.

Special Terms and Conditions for Access

The data may contain identifiers that have not been anonymised (e.g. person names, information on place of residence, names of work places and such). When publishing quotations from the data, users need to consider very carefully in each specific case what information needs to be removed or altered according to research ethical guidelines.

Disclaimer

The original data creators and the archive bear no responsibility for any results or interpretations arising from the reuse of the data.

Related Publications

Virtanen, Riikka (2014). Työelämään osallistuminen ja osallisuus vammaisten ihmisten kirjoittamissa elämäntarinoissa. Jyväskylä: Jyväskylän yliopisto. Sosiaalityön pro gradu -tutkielma.

Kahelin, Hanna-Riitta & Klemola, Miia (2017). Elämän suuntaviivoja. Diskurssianalyyttinen tulkinta vammaisuuden ja toimijuuden rakentumisesta elämäkertakeruuaineistossa. Rovaniemi: Lapin yliopisto. Sosiaalityön pro gradu -tutkielma.

Pakkala, Teija (2017). Identiteetit vammaisten elämäkerroissa. Tampere: Tampereen yliopisto. Sosiaalityön Pro gradu -tutkielma. http://urn.fi/URN:NBN:fi:uta-201706021799

Tarvainen, Merja (2018). Ruumiilliset tilat. Tavanomainen arki ja kerrottu vammaisuus. Yhteiskuntapolitiikka 83:1, 40-49. URN:NBN:fi-fe201802143399.

Tarvainen, Merja & Pohjola, Hanna & Aaltola, Elisa & Hänninen, Vilma (2018). Ruumiillinen erilaisuus ja yksinäisyys. Suuntaaja 1/2018. https://www.aspa.fi/fi/suuntaaja/suuntaaja-12018-yksin%C3%A4isyys-k%C3%B6yhyys-ja-merkityksellisyys/ruumiillinen-erilaisuus-ja [viitattu 29.3.2018].

Niemi, Riikka (2018). Vammaisten ihmisten kokemuksia kohtaamisista sosiaali- ja terveyspalvelujärjestelmässä. Välittäminen, oikeuksien kunnioittaminen ja sosiaalinen arvostus vammaisten ihmisten omaelämäkerrallisissa kirjoituksissa. Jyväskylä: Jyväskylän yliopisto. Sosiaalityön pro gradu -tutkielma. http://urn.fi/URN:NBN:fi:jyu-201808063749

Pohjola H. 2018. Acquired disability in young women: a challenge for identity?, Journal of Youth Studies, https://doi.org/10.1080/13676261.2018.1529864

Kaskinen, Maarit (2019). Elämä vammautumisen jälkeen: muutos ja identiteetti fyysisesti vammautuneiden naisten kertomuksissa. Jyväskylä: Jyväskylän yliopisto. Etnologian pro gradu -tutkielma. http://urn.fi/URN:NBN:fi:jyu-201903251940

Tarvainen, Merja (2019). Ableism and the Life Stories of People with Disabilities. Scandinavian Journal of Disability Research, 21(1), pp.291-299.doi.org/10.16993/sjdr.632

Tarvainen, Merja (2020). Loneliness in life stories by people with disabilities. (Epub ahead of print 16 June 2020) Disability & Society. https://doi.org/10.1080/09687599.2020.1779034

Tarvainen, Merja (2020). Sota- ja jälleenrakennusajan muistelukerronta elämäntarinan säikeenä. Ennen ja nyt - Historian tietosanomat 20(2), 14-33. doi.org/10.37449/ennenjanyt.89775

Tarvainen, Merja (2020). Sodan ja jälleenrakennuksen muistitieto vammaisten ihmisten elämäntarinoissa. Ennen ja nyt - Historian tietosanomat 20(2), 34-47. doi.org/10.37449/ennenjanyt.91515

Pohjola, H., & Tarvainen, M. . (2021). Identity and Masculinity in Two Cases of Early-Onset Disability Autobiography. Narrative Works, 9(2), 71-87. Retrieved from https://journals.lib.unb.ca/index.php/NW/article/view/31821

Liimatainen, Kia (2021). "Minä olen ainakin päässyt hyvin yhteiskuntaan takaisin sisään (paitsi byrokraattisesti)": etnologinen tutkielma vammautumisen kokemuksesta ja kohtaamisesta. Jyväskylä: Jyväskylän yliopisto. Kulttuurit ja yhteisöt muuttuvassa maailmassa, maisterintutkielma. http://urn.fi/URN:NBN:fi:jyu-202108254652.

Tarvainen, Merja & Hänninen, Vilma (2021). Vammaisten ihmisten eletty kansalaisuus. Teoksessa Antti Teittinen & Mari Kivistö & Merja Tarvainen & Sanna Hautala (toim.) Vammaiset ihmiset kansalaisina. Tampere: Vastapaino, 115-142.

Tarvainen, Merja & Hänninen, Vilma (2022) Disability and working-life citizenship, Nordic Social Work Research, DOI: 10.1080/2156857X.2022.2032810

Tarvainen, Merja (2024). The sense of difference: Disability and loneliness as emotional and social isolation. In Hisayo Katsui & Matti Laitinen (Eds.) Disability, Happiness and the Welfare State: Finland and the Nordic Model. Abingdon, Oxon; New York, NY: Routledge, 12-27.